Family Support Topic

Improve Design of TransferEquipment

Physical burden of care might be lessened by improving the design of transfer and patient handling equipment. Up until now, deficits in the design of such equipment has been borne by care recipients and caregivers. If patients fell, or declined in function, they simply became an inpatient. Now, there is value at reducing unnecessary hazards in home care and optimizing patient function. At the same time, embed patient... more »

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Family Support Topic

Expanding definition of family to include LGBT caregiver support

There is a dearth of research on the expanded definition of “family” and how LGBT people provide care for each other, and the people they love often without benefit of legal protections, or blood ties. Including questions about sexual orientation, gender identity and non-biological support dyads would be crucial to learning more about what those networks look like, and need in terms of support.

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Family Support Topic

Preventing developmental-behavioral problems in young children

From the perspective of a busy general pediatrician, what I believe U.S. families need is all described in my 2/20/15 article for The Hill, "Let's get smarter about preventing developmental-behavioral problems". Please read my article and share it on FB, Twitter and other social media outlets...

http://thehill.com/blogs/congress-blog/healthcare/233131-lets-get-smarter-about-preventing-developmental-behavioral

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Family Support Topic

Create a Database of Family Support Resources

Create an online database of resources, caregivers, where to apply for assistance, organizations that provide assistance, day programs, after school programs and summer camps.

Also, provide funding for people to start more of these programs as they are sadly lacking here in Tennessee!

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Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions... more »

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Family Support Topic

Care Plan for Children with Special Needs

Approximately 10-15% of children who attend child care programs have either medical, behavioral or developmental needs requiring the transfer of information from professionals (doctors, therapists) to their caregivers in lay language. Is this being done successfully? Pitfalls?

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Family Support Topic

health literacy of family caregivers

I am working toward my Master's degree in Nursing of Populations. My research focus is the health literacy of family caregivers. There is almost nothing about this in the literature. Older family caregivers are more likely to have lower health literacy; cognitive, hearing and vision deficits; stress; chronic health conditions, etc. All of these factors, and more, can impact one's health literacy. Healthcare professionals... more »

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Family Support Topic

Support for Siblings of People with Disabilities

More research is needed examining the role that siblings play in the support and caregiving of their brothers and sisters with disabilities across the life course. The perspective of the siblings with and without disabilities is important to examine. We need to better understand how siblings can successfully transition into caregiving roles, what facilitates siblings to support the self-determination of their brothers... more »

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Family Support Topic

Continued Child Support for Adult Children

In the State of California there is a rarely used Family Code that states the "The father and mother have an equal responsibility to maintain, to the extent of their ability, a child of whatever age who is incapacitated from earning a living and without sufficient means." I recently used this law to win continued child support for both of my 18 & 20 year old children with mental illnesses. Research on this law could... more »

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Family Support Topic

The NEXT STEP in Dementia Care

Contact: Barbara Brock, Published Research Author. President, Communication Art, Inc. Office: 419-865-6131 Mobile: 419-265 6131 “The NEXT STEP IN DEMENTIA CARE” Health care professionals should be aware of a standardized, dementia specific, cognitive assessment that can have a dramatic affect on they care for people who are experiencing Alzheimer’s and other types of dementia. Health care professionals are missing... more »

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