Family Support Topic

Family Support Topic

Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

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Family Support Topic

Linking Public Schools to the Mental Health Dialogue

On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »

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Family Support Topic

Amelia

When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.

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Family Support Topic

Employer Best Practices for Employed Caregivers

We know many family caregivers are employed and caregiving does have an impact on their ability to do their jobs. What are the best ways that employers can support the caregivers in their employ?

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Family Support Topic

Research how to help families understand the process of grief

One area of support I find families need is how to navigate the grieving process. Some families are aware of where they are emotionally regarding their loved one and some do not seem to be aware at all, or are very good at hiding it. As a provider, I would like more information/resources/etc on how to help a family in the grief process so that they can manage their feelings as well as provide the necessary support to ...more »

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Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Family Support Topic

An assigned patient mgr at patient's medical insurance provuder

A single point person is needed within a patient's insurance company so the family caregiver has only to speak with one person who manages all the patients referrals and authorizations throughout medical management, member services and behavioral health. This will unburden the family's stress and free up many hours of being put on hold and bounced from dept to dept. While some insurance companies claim to have this system ...more »

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Family Support Topic

Targeted benefits planning training

Establish training programs and credentials to prepare benefits planners to serve caregivers and PWDs from low and middle income families

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Family Support Topic

Visitability promotion equipment lending

Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family

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Family Support Topic

Injury prevention

Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities

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Disability and long-term care insurance for caregivers

Establish and test options for caregivers to purchase affordable disability and long-term care insurance coverage for themselves

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Family Support Topic

Caregiver wellness

Develop hands-on wellness programs for family caregivers (diet, exercise,mental health,primary care) including tangible caregiving supports

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