Campaign: Family Support Topic

Your First Idea!

Welcome to your new IdeaScale community! Your community has now been created. You can edit your idea by logging in as a moderator, then clicking the 'moderate idea' menu.

Submitted by (@rachelbeyerle)

Voting

0 votes
1 up votes
1 down votes
Active

Campaign: Family Support Topic

Dialogue Starts March 9th!

Welcome to the National Dialogue on Family Support. We look forward to your ideas, comments, and hearing what topics are most important to you!

Submitted by (@rachelbeyerle)

Voting

2 votes
3 up votes
1 down votes
Active

Campaign: Family Support Topic

Incidence of stress-related health disorders in family caregivers

The level of long-term chronic stress may be causing auto-immune conditions, particularly in older mothers. As far as I know, this has not been studied, but anecdotally, practically every older mother I know who is an active advocate, also has an auto-immune disorder. Until it is identified as a problem, no one will address it with any ideas for remedies.

Submitted by

Voting

12 votes
14 up votes
2 down votes
Active

Campaign: Family Support Topic

Concerns for people with disabilities who become parents

The National Council on Disability 2012 report, "Rocking the Cradle: Ensuring the Rights of Parents with Disabilities," identified numerous knowledge gaps. How many people with different types of disabilities are attempting to raise children? How many of them are involved with child welfare systems? What kinds of supports are available to them ( and where)? What are their outcomes? This field is wide open, and the ...more »

Submitted by

Voting

14 votes
16 up votes
2 down votes
Active

Campaign: Family Support Topic

Cost Benefits of Family Caregiver Support Programs

More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed ...more »

Submitted by

Voting

40 votes
40 up votes
0 down votes
Active

Campaign: Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

Submitted by

Voting

13 votes
16 up votes
3 down votes
Active

Campaign: Family Support Topic

Support for Caregivers

I have had over 13 calls from Seniors taking care of their parents. Trying to leave them in their home and still live close by. Some have hired caretakers to come during the day and night. But they always have a time, when the Hired person can't come in a take care of Mom or Dad. Then they call me and ask if I know of someone who could come in at last min. and sit with their parent. I propose to set up a Temporary ...more »

Submitted by

Voting

7 votes
8 up votes
1 down votes
Active

Campaign: Family Support Topic

Database of backup caregivers

The most important thing for caregivers, and the family members we/they care for, is an occasional break so we can have social interaction outside the home. To take a break we need backup assistance from time-to-time that we can count on. Independent Living Centers (CILs?) have provided no assistance in this regard. Shouldn't that be one of their core functions? What do CILs do--just advocacy? At any rate, we need ...more »

Submitted by

Voting

15 votes
17 up votes
2 down votes
Active

Campaign: Family Support Topic

Cost-effectiveness of respite for family caregivers

Research is needed to demonstrate how respite for family caregivers may be cost-effective in terms of preventing institutionalization of the care recipient, enabling caregivers to maintain their own good health as well as that of the care recipient, etc.

Submitted by

Voting

33 votes
34 up votes
1 down votes
Active

Campaign: Family Support Topic

Respite Research

Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »

Submitted by

Voting

25 votes
25 up votes
0 down votes
Active

Campaign: Family Support Topic

Co-operative caregiving

Is there any research available on the creation and maintenance of neighborhood co-operatives for caregiving for vulnerable adults?

Submitted by

Voting

11 votes
11 up votes
0 down votes
Active

Campaign: Family Support Topic

Why don't more people take advantage of adult day programs?

Many adult day programs are reasonably priced but struggle will minimal attendance. The good programs provide a wide of activities to meet the needs of participants. How do they attract more participants? If it's fear on the part of potential participants and their families, how to the programs overcome it?

Submitted by

Voting

12 votes
12 up votes
0 down votes
Active