Family Support Topic

Family Support Topic

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Attending medical appointments

As caregivers, our family members couldn't always be available to attend medical appointments along with our parents. We all lived out of town or out of state. Our parents had some memory loss, so they couldn't always understand the information from the medical providers, nor relay the information to us after an appointment. We would have appreciated a service where we could hire someone to attend the medical appointments ...more »

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Family Support Topic

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Care Plan for Children with Special Needs

Approximately 10-15% of children who attend child care programs have either medical, behavioral or developmental needs requiring the transfer of information from professionals (doctors, therapists) to their caregivers in lay language. Is this being done successfully? Pitfalls?

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health literacy of family caregivers

I am working toward my Master's degree in Nursing of Populations. My research focus is the health literacy of family caregivers. There is almost nothing about this in the literature. Older family caregivers are more likely to have lower health literacy; cognitive, hearing and vision deficits; stress; chronic health conditions, etc. All of these factors, and more, can impact one's health literacy. Healthcare professionals ...more »

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The NEXT STEP in Dementia Care

Contact: Barbara Brock, Published Research Author. President, Communication Art, Inc. Office: 419-865-6131 Mobile: 419-265 6131 “The NEXT STEP IN DEMENTIA CARE” Health care professionals should be aware of a standardized, dementia specific, cognitive assessment that can have a dramatic affect on they care for people who are experiencing Alzheimer’s and other types of dementia. Health care professionals are missing ...more »

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Continued Child Support for Adult Children

In the State of California there is a rarely used Family Code that states the "The father and mother have an equal responsibility to maintain, to the extent of their ability, a child of whatever age who is incapacitated from earning a living and without sufficient means." I recently used this law to win continued child support for both of my 18 & 20 year old children with mental illnesses. Research on this law could ...more »

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Greater detail on advanced directives Policy/Law changes

As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »

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An assigned patient mgr at patient's medical insurance provuder

A single point person is needed within a patient's insurance company so the family caregiver has only to speak with one person who manages all the patients referrals and authorizations throughout medical management, member services and behavioral health. This will unburden the family's stress and free up many hours of being put on hold and bounced from dept to dept. While some insurance companies claim to have this system ...more »

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Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Support for Caregivers

I have had over 13 calls from Seniors taking care of their parents. Trying to leave them in their home and still live close by. Some have hired caretakers to come during the day and night. But they always have a time, when the Hired person can't come in a take care of Mom or Dad. Then they call me and ask if I know of someone who could come in at last min. and sit with their parent. I propose to set up a Temporary ...more »

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Support for Siblings of People with Disabilities

More research is needed examining the role that siblings play in the support and caregiving of their brothers and sisters with disabilities across the life course. The perspective of the siblings with and without disabilities is important to examine. We need to better understand how siblings can successfully transition into caregiving roles, what facilitates siblings to support the self-determination of their brothers ...more »

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