Family Support Topic

Family Support Topic

Cost Benefits of Family Caregiver Support Programs

More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed ...more »

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Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

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Family Support Topic

Greater detail on advanced directives Policy/Law changes

As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »

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Family Support Topic

Create a Database of Family Support Resources

Create an online database of resources, caregivers, where to apply for assistance, organizations that provide assistance, day programs, after school programs and summer camps.

Also, provide funding for people to start more of these programs as they are sadly lacking here in Tennessee!

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Family Support Topic

Preventing developmental-behavioral problems in young children

From the perspective of a busy general pediatrician, what I believe U.S. families need is all described in my 2/20/15 article for The Hill, "Let's get smarter about preventing developmental-behavioral problems". Please read my article and share it on FB, Twitter and other social media outlets...

http://thehill.com/blogs/congress-blog/healthcare/233131-lets-get-smarter-about-preventing-developmental-behavioral

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health literacy of family caregivers

I am working toward my Master's degree in Nursing of Populations. My research focus is the health literacy of family caregivers. There is almost nothing about this in the literature. Older family caregivers are more likely to have lower health literacy; cognitive, hearing and vision deficits; stress; chronic health conditions, etc. All of these factors, and more, can impact one's health literacy. Healthcare professionals ...more »

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Family Support Topic

Attending medical appointments

As caregivers, our family members couldn't always be available to attend medical appointments along with our parents. We all lived out of town or out of state. Our parents had some memory loss, so they couldn't always understand the information from the medical providers, nor relay the information to us after an appointment. We would have appreciated a service where we could hire someone to attend the medical appointments ...more »

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Family Support Topic

Respite Research

Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »

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Visitability promotion equipment lending

Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family

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