Family Support Topic

Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Family Support Topic

Greater detail on advanced directives Policy/Law changes

As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »

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Family Support Topic

Cost-effectiveness of respite for family caregivers

Research is needed to demonstrate how respite for family caregivers may be cost-effective in terms of preventing institutionalization of the care recipient, enabling caregivers to maintain their own good health as well as that of the care recipient, etc.

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Family Support Topic

Continued Child Support for Adult Children

In the State of California there is a rarely used Family Code that states the "The father and mother have an equal responsibility to maintain, to the extent of their ability, a child of whatever age who is incapacitated from earning a living and without sufficient means." I recently used this law to win continued child support for both of my 18 & 20 year old children with mental illnesses. Research on this law could ...more »

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Family Support Topic

Caregiving and the Workplace

Caregiving results in an overall cost to business of $33.6 billion per year due to absenteeism, supervisory time, unpaid leave, and reduced hours. Family caregiving is also estimated to add another $13.4 billion or an 8% differential to healthcare business costs. How do we convince companies to provide resources to help their employees manage their jobs and their caregiving responsibilities?

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Family Support Topic

Knowledge of free/low cost resources by caregivers

High end resources are well marketed. Those who need free or low cost options often are unable to identify them. Social workers in the community are mostly unaware of faith based and small grant and/or institutional services. How can this information be better understood by caregivers and those who advise them?

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Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

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Family Support Topic

Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

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Family Support Topic

Visitability promotion equipment lending

Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family

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Family Support Topic

Effective/efficient ways to provide support to Alz caregivers

What are effective/efficient ways to provide support to Latina/o family caregivers that provide care to a loved one with Alzheimer’s disease or related dementia?

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Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »

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Family Support Topic

Incidence of stress-related health disorders in family caregivers

The level of long-term chronic stress may be causing auto-immune conditions, particularly in older mothers. As far as I know, this has not been studied, but anecdotally, practically every older mother I know who is an active advocate, also has an auto-immune disorder. Until it is identified as a problem, no one will address it with any ideas for remedies.

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