Family Support Topic

Family Support Topic

Preventing developmental-behavioral problems in young children

From the perspective of a busy general pediatrician, what I believe U.S. families need is all described in my 2/20/15 article for The Hill, "Let's get smarter about preventing developmental-behavioral problems". Please read my article and share it on FB, Twitter and other social media outlets...

http://thehill.com/blogs/congress-blog/healthcare/233131-lets-get-smarter-about-preventing-developmental-behavioral

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Family Support Topic

Caregiver wellness

Develop hands-on wellness programs for family caregivers (diet, exercise,mental health,primary care) including tangible caregiving supports

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Support for Siblings of People with Disabilities

More research is needed examining the role that siblings play in the support and caregiving of their brothers and sisters with disabilities across the life course. The perspective of the siblings with and without disabilities is important to examine. We need to better understand how siblings can successfully transition into caregiving roles, what facilitates siblings to support the self-determination of their brothers ...more »

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Family Support Topic

Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

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Respite Research

Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »

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Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »

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Research how to help families understand the process of grief

One area of support I find families need is how to navigate the grieving process. Some families are aware of where they are emotionally regarding their loved one and some do not seem to be aware at all, or are very good at hiding it. As a provider, I would like more information/resources/etc on how to help a family in the grief process so that they can manage their feelings as well as provide the necessary support to ...more »

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Linking Public Schools to the Mental Health Dialogue

On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »

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Knowledge of free/low cost resources by caregivers

High end resources are well marketed. Those who need free or low cost options often are unable to identify them. Social workers in the community are mostly unaware of faith based and small grant and/or institutional services. How can this information be better understood by caregivers and those who advise them?

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Visitability promotion equipment lending

Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family

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