Family Support Topic

Campaign: Family Support Topic

Provide tax credits for caregivers

If a caregiver is providing care, allow them to have a tax credit, for the sheer savings to the tax paying public of not having medicaid bear the costs of giving care. In the past 5 years, as a caregiver, I have saved taxpayers thousands and thousands of dollars by providing care to an elderly family member, versus relying on the government to care for the individual. Give credit where credit is due.

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Campaign: Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »

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Campaign: Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

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Campaign: Family Support Topic

Respite Research

Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »

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Campaign: Family Support Topic

Your First Idea!

Welcome to your new IdeaScale community! Your community has now been created. You can edit your idea by logging in as a moderator, then clicking the 'moderate idea' menu.

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Campaign: Family Support Topic

Improve Design of TransferEquipment

Physical burden of care might be lessened by improving the design of transfer and patient handling equipment. Up until now, deficits in the design of such equipment has been borne by care recipients and caregivers. If patients fell, or declined in function, they simply became an inpatient. Now, there is value at reducing unnecessary hazards in home care and optimizing patient function. At the same time, embed patient ...more »

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Campaign: Family Support Topic

Database of backup caregivers

The most important thing for caregivers, and the family members we/they care for, is an occasional break so we can have social interaction outside the home. To take a break we need backup assistance from time-to-time that we can count on. Independent Living Centers (CILs?) have provided no assistance in this regard. Shouldn't that be one of their core functions? What do CILs do--just advocacy? At any rate, we need ...more »

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Campaign: Family Support Topic

Why don't more people take advantage of adult day programs?

Many adult day programs are reasonably priced but struggle will minimal attendance. The good programs provide a wide of activities to meet the needs of participants. How do they attract more participants? If it's fear on the part of potential participants and their families, how to the programs overcome it?

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Campaign: Family Support Topic

Support for Siblings of People with Disabilities

More research is needed examining the role that siblings play in the support and caregiving of their brothers and sisters with disabilities across the life course. The perspective of the siblings with and without disabilities is important to examine. We need to better understand how siblings can successfully transition into caregiving roles, what facilitates siblings to support the self-determination of their brothers ...more »

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Campaign: Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Campaign: Family Support Topic

Cost Benefits of Family Caregiver Support Programs

More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed ...more »

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Campaign: Family Support Topic

Amelia

When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.

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