Family Support Topic

Cost Benefits of Family Caregiver Support Programs

More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed... more »

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Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

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Family Support Topic

An assigned patient mgr at patient's medical insurance provuder

A single point person is needed within a patient's insurance company so the family caregiver has only to speak with one person who manages all the patients referrals and authorizations throughout medical management, member services and behavioral health. This will unburden the family's stress and free up many hours of being put on hold and bounced from dept to dept. While some insurance companies claim to have this system... more »

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Family Support Topic

Care Plan for Children with Special Needs

Approximately 10-15% of children who attend child care programs have either medical, behavioral or developmental needs requiring the transfer of information from professionals (doctors, therapists) to their caregivers in lay language. Is this being done successfully? Pitfalls?

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Family Support Topic

Caregiver wellness

Develop hands-on wellness programs for family caregivers (diet, exercise,mental health,primary care) including tangible caregiving supports

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Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions... more »

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Family Support Topic

The NEXT STEP in Dementia Care

Contact: Barbara Brock, Published Research Author. President, Communication Art, Inc. Office: 419-865-6131 Mobile: 419-265 6131 “The NEXT STEP IN DEMENTIA CARE” Health care professionals should be aware of a standardized, dementia specific, cognitive assessment that can have a dramatic affect on they care for people who are experiencing Alzheimer’s and other types of dementia. Health care professionals are missing... more »

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Family Support Topic

health literacy of family caregivers

I am working toward my Master's degree in Nursing of Populations. My research focus is the health literacy of family caregivers. There is almost nothing about this in the literature. Older family caregivers are more likely to have lower health literacy; cognitive, hearing and vision deficits; stress; chronic health conditions, etc. All of these factors, and more, can impact one's health literacy. Healthcare professionals... more »

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Family Support Topic

Research how to help families understand the process of grief

One area of support I find families need is how to navigate the grieving process. Some families are aware of where they are emotionally regarding their loved one and some do not seem to be aware at all, or are very good at hiding it. As a provider, I would like more information/resources/etc on how to help a family in the grief process so that they can manage their feelings as well as provide the necessary support to... more »

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Family Support Topic

Injury prevention

Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities

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Family Support Topic

Linking Public Schools to the Mental Health Dialogue

On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed... more »

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Family Support Topic

Amelia

When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.

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Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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