Family Support Topic

Cost Benefits of Family Caregiver Support Programs

More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed ...more »

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Family Support Topic

Improve Design of TransferEquipment

Physical burden of care might be lessened by improving the design of transfer and patient handling equipment. Up until now, deficits in the design of such equipment has been borne by care recipients and caregivers. If patients fell, or declined in function, they simply became an inpatient. Now, there is value at reducing unnecessary hazards in home care and optimizing patient function. At the same time, embed patient ...more »

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Family Support Topic

Incidence of stress-related health disorders in family caregivers

The level of long-term chronic stress may be causing auto-immune conditions, particularly in older mothers. As far as I know, this has not been studied, but anecdotally, practically every older mother I know who is an active advocate, also has an auto-immune disorder. Until it is identified as a problem, no one will address it with any ideas for remedies.

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Family Support Topic

Database of backup caregivers

The most important thing for caregivers, and the family members we/they care for, is an occasional break so we can have social interaction outside the home. To take a break we need backup assistance from time-to-time that we can count on. Independent Living Centers (CILs?) have provided no assistance in this regard. Shouldn't that be one of their core functions? What do CILs do--just advocacy? At any rate, we need ...more »

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Family Support Topic

Support for Caregivers

I have had over 13 calls from Seniors taking care of their parents. Trying to leave them in their home and still live close by. Some have hired caretakers to come during the day and night. But they always have a time, when the Hired person can't come in a take care of Mom or Dad. Then they call me and ask if I know of someone who could come in at last min. and sit with their parent. I propose to set up a Temporary ...more »

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Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

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Family Support Topic

Why don't more people take advantage of adult day programs?

Many adult day programs are reasonably priced but struggle will minimal attendance. The good programs provide a wide of activities to meet the needs of participants. How do they attract more participants? If it's fear on the part of potential participants and their families, how to the programs overcome it?

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Family Support Topic

Greater detail on advanced directives Policy/Law changes

As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »

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Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »

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