Family Support Topic

Delay of the progression of Alzheimer’s disease in Latinas/os

What caregiver characteristics, if any, will help the delay of progression of Alzheimer’s disease or related dementia in Latinas/os?

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Family Support Topic

Caregiving and the Workplace

Caregiving results in an overall cost to business of $33.6 billion per year due to absenteeism, supervisory time, unpaid leave, and reduced hours. Family caregiving is also estimated to add another $13.4 billion or an 8% differential to healthcare business costs. How do we convince companies to provide resources to help their employees manage their jobs and their caregiving responsibilities?

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Family Support Topic

Injury prevention

Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities

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Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Family Support Topic

Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

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Family Support Topic

Where is most support needed for Latina/o Alz caregivers?

What are the perceptions of Latina/o family caregivers that provide care to a loved one with Alzheimer’s disease or related dementia in regards to support and where do they feel most support is needed?

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Family Support Topic

Amelia

When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.

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Family Support Topic

Disparate Impact on Low-Income vs. High-Income Caregiving Worker

Research on whether and/or how much disparity exists between the impact of family caregiving on low wage workers versus high wage workers.

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Family Support Topic

Care Plan for Children with Special Needs

Approximately 10-15% of children who attend child care programs have either medical, behavioral or developmental needs requiring the transfer of information from professionals (doctors, therapists) to their caregivers in lay language. Is this being done successfully? Pitfalls?

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Family Support Topic

Why don't more people take advantage of adult day programs?

Many adult day programs are reasonably priced but struggle will minimal attendance. The good programs provide a wide of activities to meet the needs of participants. How do they attract more participants? If it's fear on the part of potential participants and their families, how to the programs overcome it?

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Family Support Topic

Improve Design of TransferEquipment

Physical burden of care might be lessened by improving the design of transfer and patient handling equipment. Up until now, deficits in the design of such equipment has been borne by care recipients and caregivers. If patients fell, or declined in function, they simply became an inpatient. Now, there is value at reducing unnecessary hazards in home care and optimizing patient function. At the same time, embed patient ...more »

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Family Support Topic

Effective/efficient ways to provide support to Alz caregivers

What are effective/efficient ways to provide support to Latina/o family caregivers that provide care to a loved one with Alzheimer’s disease or related dementia?

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