Campaign: Family Support Topic

Paying family members

Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »

Submitted by

Voting

9 votes
9 up votes
0 down votes
Active

Campaign: Family Support Topic

Support for Caregivers

I have had over 13 calls from Seniors taking care of their parents. Trying to leave them in their home and still live close by. Some have hired caretakers to come during the day and night. But they always have a time, when the Hired person can't come in a take care of Mom or Dad. Then they call me and ask if I know of someone who could come in at last min. and sit with their parent. I propose to set up a Temporary ...more »

Submitted by

Voting

7 votes
8 up votes
1 down votes
Active

Campaign: Family Support Topic

Caregiver wellness

Develop hands-on wellness programs for family caregivers (diet, exercise,mental health,primary care) including tangible caregiving supports

Submitted by

Voting

1 vote
1 up votes
0 down votes
Active

Campaign: Family Support Topic

Dialogue Starts March 9th!

Welcome to the National Dialogue on Family Support. We look forward to your ideas, comments, and hearing what topics are most important to you!

Submitted by (@rachelbeyerle)

Voting

2 votes
3 up votes
1 down votes
Active

Campaign: Family Support Topic

Planning for Financing of Long-Term Services to Support Caregive

For many families, caregiving can have a negative financial impact. Some of this is unavoidable, but some can be ameliorated. People need more information and more options to help finance supportive services that help both the caregiver and their loved ones.

Submitted by

Voting

11 votes
11 up votes
0 down votes
Active

Campaign: Family Support Topic

Parent / Student

As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?

Submitted by

Voting

2 votes
2 up votes
0 down votes
Active

Campaign: Family Support Topic

Expanding definition of family to include LGBT caregiver support

There is a dearth of research on the expanded definition of “family” and how LGBT people provide care for each other, and the people they love often without benefit of legal protections, or blood ties. Including questions about sexual orientation, gender identity and non-biological support dyads would be crucial to learning more about what those networks look like, and need in terms of support.

Submitted by

Voting

6 votes
7 up votes
1 down votes
Active

Campaign: Family Support Topic

Care Plan for Children with Special Needs

Approximately 10-15% of children who attend child care programs have either medical, behavioral or developmental needs requiring the transfer of information from professionals (doctors, therapists) to their caregivers in lay language. Is this being done successfully? Pitfalls?

Submitted by

Voting

1 vote
1 up votes
0 down votes
Active

Campaign: Family Support Topic

Improve Design of TransferEquipment

Physical burden of care might be lessened by improving the design of transfer and patient handling equipment. Up until now, deficits in the design of such equipment has been borne by care recipients and caregivers. If patients fell, or declined in function, they simply became an inpatient. Now, there is value at reducing unnecessary hazards in home care and optimizing patient function. At the same time, embed patient ...more »

Submitted by

Voting

11 votes
12 up votes
1 down votes
Active

Campaign: Family Support Topic

Greater detail on advanced directives Policy/Law changes

As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »

Submitted by

Voting

3 votes
3 up votes
0 down votes
Active

Campaign: Family Support Topic

Research how to help families understand the process of grief

One area of support I find families need is how to navigate the grieving process. Some families are aware of where they are emotionally regarding their loved one and some do not seem to be aware at all, or are very good at hiding it. As a provider, I would like more information/resources/etc on how to help a family in the grief process so that they can manage their feelings as well as provide the necessary support to ...more »

Submitted by

Voting

1 vote
1 up votes
0 down votes
Active