Welcome to the National Dialogue on Family Support. We look forward to your ideas, comments, and hearing what topics are most important to you!
As caregivers, our family members couldn't always be available to attend medical appointments along with our parents. We all lived out of town or out of state. Our parents had some memory loss, so they couldn't always understand the information from the medical providers, nor relay the information to us after an appointment. We would have appreciated a service where we could hire someone to attend the medical appointments ...more »
Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities
As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?
If a caregiver is providing care, allow them to have a tax credit, for the sheer savings to the tax paying public of not having medicaid bear the costs of giving care. In the past 5 years, as a caregiver, I have saved taxpayers thousands and thousands of dollars by providing care to an elderly family member, versus relying on the government to care for the individual. Give credit where credit is due.
On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »
A single point person is needed within a patient's insurance company so the family caregiver has only to speak with one person who manages all the patients referrals and authorizations throughout medical management, member services and behavioral health. This will unburden the family's stress and free up many hours of being put on hold and bounced from dept to dept. While some insurance companies claim to have this system ...more »
Contact: Barbara Brock, Published Research Author. President, Communication Art, Inc. Office: 419-865-6131 Mobile: 419-265 6131 “The NEXT STEP IN DEMENTIA CARE” Health care professionals should be aware of a standardized, dementia specific, cognitive assessment that can have a dramatic affect on they care for people who are experiencing Alzheimer’s and other types of dementia. Health care professionals are missing ...more »
Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family
Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »
We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.
Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?
Establish training programs and credentials to prepare benefits planners to serve caregivers and PWDs from low and middle income families