In the State of California there is a rarely used Family Code that states the "The father and mother have an equal responsibility to maintain, to the extent of their ability, a child of whatever age who is incapacitated from earning a living and without sufficient means." I recently used this law to win continued child support for both of my 18 & 20 year old children with mental illnesses. Research on this law could ...more »
We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.
Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?
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On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »
Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family
For many families, caregiving can have a negative financial impact. Some of this is unavoidable, but some can be ameliorated. People need more information and more options to help finance supportive services that help both the caregiver and their loved ones.
We know many family caregivers are employed and caregiving does have an impact on their ability to do their jobs. What are the best ways that employers can support the caregivers in their employ?
The level of long-term chronic stress may be causing auto-immune conditions, particularly in older mothers. As far as I know, this has not been studied, but anecdotally, practically every older mother I know who is an active advocate, also has an auto-immune disorder. Until it is identified as a problem, no one will address it with any ideas for remedies.
When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.
Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »
The most important thing for caregivers, and the family members we/they care for, is an occasional break so we can have social interaction outside the home. To take a break we need backup assistance from time-to-time that we can count on. Independent Living Centers (CILs?) have provided no assistance in this regard. Shouldn't that be one of their core functions? What do CILs do--just advocacy? At any rate, we need ...more »
Establish training programs and credentials to prepare benefits planners to serve caregivers and PWDs from low and middle income families