Campaign: Family Support Topic

Factors Impacting Family Expectations

would like to see more research (and then knowledge to practice) about the factors that most impact the development of expectations by parents/siblings/family members for their loved one with a disability (is it parent to parent support? simply access to internet information? a teacher or rehab counselor?)

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Campaign: Family Support Topic

Injury prevention

Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities

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Campaign: Family Support Topic

Support for Siblings of People with Disabilities

More research is needed examining the role that siblings play in the support and caregiving of their brothers and sisters with disabilities across the life course. The perspective of the siblings with and without disabilities is important to examine. We need to better understand how siblings can successfully transition into caregiving roles, what facilitates siblings to support the self-determination of their brothers ...more »

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Campaign: Family Support Topic

Targeted benefits planning training

Establish training programs and credentials to prepare benefits planners to serve caregivers and PWDs from low and middle income families

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Campaign: Family Support Topic

Continued Child Support for Adult Children

In the State of California there is a rarely used Family Code that states the "The father and mother have an equal responsibility to maintain, to the extent of their ability, a child of whatever age who is incapacitated from earning a living and without sufficient means." I recently used this law to win continued child support for both of my 18 & 20 year old children with mental illnesses. Research on this law could ...more »

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Campaign: Family Support Topic

Support for Caregivers

I have had over 13 calls from Seniors taking care of their parents. Trying to leave them in their home and still live close by. Some have hired caretakers to come during the day and night. But they always have a time, when the Hired person can't come in a take care of Mom or Dad. Then they call me and ask if I know of someone who could come in at last min. and sit with their parent. I propose to set up a Temporary ...more »

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Campaign: Family Support Topic

Linking Public Schools to the Mental Health Dialogue

On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »

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Campaign: Family Support Topic

The NEXT STEP in Dementia Care

Contact: Barbara Brock, Published Research Author. President, Communication Art, Inc. Office: 419-865-6131 Mobile: 419-265 6131 “The NEXT STEP IN DEMENTIA CARE” Health care professionals should be aware of a standardized, dementia specific, cognitive assessment that can have a dramatic affect on they care for people who are experiencing Alzheimer’s and other types of dementia. Health care professionals are missing ...more »

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Campaign: Family Support Topic

Visitability promotion equipment lending

Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family

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Campaign: Family Support Topic

Why do caregivers have difficulty asking for help?

We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.

Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?

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Campaign: Family Support Topic

Concerns for people with disabilities who become parents

The National Council on Disability 2012 report, "Rocking the Cradle: Ensuring the Rights of Parents with Disabilities," identified numerous knowledge gaps. How many people with different types of disabilities are attempting to raise children? How many of them are involved with child welfare systems? What kinds of supports are available to them ( and where)? What are their outcomes? This field is wide open, and the ...more »

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