If a caregiver is providing care, allow them to have a tax credit, for the sheer savings to the tax paying public of not having medicaid bear the costs of giving care. In the past 5 years, as a caregiver, I have saved taxpayers thousands and thousands of dollars by providing care to an elderly family member, versus relying on the government to care for the individual. Give credit where credit is due.
What are the perceptions of Latina/o family caregivers that provide care to a loved one with Alzheimer’s disease or related dementia in regards to support and where do they feel most support is needed?
For many families, caregiving can have a negative financial impact. Some of this is unavoidable, but some can be ameliorated. People need more information and more options to help finance supportive services that help both the caregiver and their loved ones.
When 2 people are sick sometimes they could use cleaning help. Also someone to talk to about how they feel. It would be fun to do an outing with others. Friends don't always understand you don't always want to talk disabilities. Sometimes you want to talk abilities.
Establish community-level "visitability" equipment loan programs so caregivers can borrow portable ramps,lifts, grab bars &c in order to increase options for family members to visit other inaccessible homes of friends and family
Welcome to the National Dialogue on Family Support. We look forward to your ideas, comments, and hearing what topics are most important to you!
More research is needed to demonstrate the cost benefits of family caregiver support programs. Supporting family caregivers can reduce undesirable placements in institutional settings, prevent avoidable hospitalizations, improve care coordination, and enhance the overall health and wellbeing of individuals with disabilities. However, the research on cost benefits is very limited. Particularly as more states move to managed ...more »
Respite is often the most frequently requested family support service. However, according to the ARCH/ACL Expert Panel on Respite Research, which will be issuing respite research recommendations this summer, high quality research on respite outcomes for the family caregiver, the care recipient and the family as a whole, including cost benefits, is limited and often fraught with methodological problems. More and better ...more »
We all know caregiving is difficult and requires a team. There are many resources available to caregivers but caregivers have challenges reaching out and asking for help.
Building a care team and developing a care plan can avoid some caregiver heath challenges, how do we make it okay to ask for help?
On top of everything that one has to learn when caring for children with mental health issues, butting up against way-behind-the-curve school systems may be the worst. This major childhood institution has to be informed about signs and behaviors of the children (and parents) with MH problems so that all can be served. Our children are not bullies. Their struggle is unique and cannot be punished, suspended or shamed ...more »
Develop training paradigms, plus prepare personal trainers, specifically to support family caregivers of persons with physical disabilities
From the perspective of a busy general pediatrician, what I believe U.S. families need is all described in my 2/20/15 article for The Hill, "Let's get smarter about preventing developmental-behavioral problems". Please read my article and share it on FB, Twitter and other social media outlets...