For many families, caregiving can have a negative financial impact. Some of this is unavoidable, but some can be ameliorated. People need more information and more options to help finance supportive services that help both the caregiver and their loved ones.
If a caregiver is providing care, allow them to have a tax credit, for the sheer savings to the tax paying public of not having medicaid bear the costs of giving care. In the past 5 years, as a caregiver, I have saved taxpayers thousands and thousands of dollars by providing care to an elderly family member, versus relying on the government to care for the individual. Give credit where credit is due.
There is a dearth of research on the expanded definition of “family” and how LGBT people provide care for each other, and the people they love often without benefit of legal protections, or blood ties. Including questions about sexual orientation, gender identity and non-biological support dyads would be crucial to learning more about what those networks look like, and need in terms of support.
One area of support I find families need is how to navigate the grieving process. Some families are aware of where they are emotionally regarding their loved one and some do not seem to be aware at all, or are very good at hiding it. As a provider, I would like more information/resources/etc on how to help a family in the grief process so that they can manage their feelings as well as provide the necessary support to ...more »
Some Medicaid and other government programs (including the VA) allow for paying people to provide personal assistance and other services to members of their family who need LTSS. In some cases, parents and spouses can be paid. I’d like to understand the impact of paying family members to provide LTSS. This includes impact on the caregiver himself or herself, economically, socially, and in terms of possible reductions ...more »
A single point person is needed within a patient's insurance company so the family caregiver has only to speak with one person who manages all the patients referrals and authorizations throughout medical management, member services and behavioral health. This will unburden the family's stress and free up many hours of being put on hold and bounced from dept to dept. While some insurance companies claim to have this system ...more »
Create an online database of resources, caregivers, where to apply for assistance, organizations that provide assistance, day programs, after school programs and summer camps.
Also, provide funding for people to start more of these programs as they are sadly lacking here in Tennessee!
As a new generation of individuals with autism comes of age, I would like to see research regarding mentoring programs for teens and young adults with ASD. How can we promote mentoring programs within the autism community? How can we work to establish positive role models for youngsters with ASD? What kind of training and support is needed to make these programs effective?
High end resources are well marketed. Those who need free or low cost options often are unable to identify them. Social workers in the community are mostly unaware of faith based and small grant and/or institutional services. How can this information be better understood by caregivers and those who advise them?
As a caregiver and DHCPOA I would like to start a conversation and bring about policy changes to have advanced directives give greater instructions to the people who are to carry out the individuals wishes as to what to do if XYZ happens, not just, withhold nutrition and hydration if I'm terminally ill. Give deeper instructions, who do you want to provide caregiving for you if you should need it? Do you expect your family ...more »
The level of long-term chronic stress may be causing auto-immune conditions, particularly in older mothers. As far as I know, this has not been studied, but anecdotally, practically every older mother I know who is an active advocate, also has an auto-immune disorder. Until it is identified as a problem, no one will address it with any ideas for remedies.
We know many family caregivers are employed and caregiving does have an impact on their ability to do their jobs. What are the best ways that employers can support the caregivers in their employ?